Road Trip – Chapter 4

 

Yesterday was a day of rest for me. Felicity painted two pictures. I went for a five minute walk after lunch then slept through the afternoon. 

Snow is forecast for Banff so, since we don’t know how the RV will handle that and we wouldn’t be able to see the Rockies, anyway, we’ll go to Drumheller, which Cousin Alison recommended. It features a gigantic dinosaur replica whose head you can climb into, a coal mine tour and other tourist attractions. It’s unlikely there will be many tourists there now. It looks like everything shuts down at the end of this month. 

Henry overshadowed by the dinosaur.

I woke this morning from a dream where bells were ringing all around. The people I was with didn’t know why. It was the 100th anniversary of the end of WW1 when my body was minus-26 years old. 

My thought as I got up was “oh no, not breakfast again”. That’s the downside of no longer feeling hungry. Meals become a chore instead of a pleasure. I felt ok about it almost immediately, though. It’s a blessing to be alive, just a concept that some activities are chores. 

We drive to Drumheller, stopping at a wool shop on a farm that has been in the family for four generations. I’ve been thinking it must be very lonely out here where the houses are far apart, one per giant farm, and there appear to be no gathering places. The lady who spins and knits and operates the store says her kids and the in-laws often stop by. The winters are long but it’s okay. 

First stop in Drumheller is the doctors office because I will soon need more ALS medicine. We have to get a prescription because the one from my neurologist won’t work in Canada. 

Everyone is so friendly, helpful and cheerful. The Indian doctor carries the baby of the patient ahead of us so the mom can rest and he tells her older daughter that despite his appearance he is actually Harry Potter and can prove it. Would she like him to do that?  She would. I wish I could see what he does. She sounds convinced. 

The pharmacist we go to calls all the other pharmacists in town to see if they have my meds in stock so he can send us to them if they do. They don’t and he can’t get them until Monday so we’ll be here for three nights. 

The campsite Felicity likes the look of turns out to be closed for the season but others are still open. We don’t want to go to the Rockies yet, anyway. 

Next day – An inch or two of snow fell overnight. We turned on the propane central heating and hope it will also keep the plumbing from freezing. The electricity was off for a while but it’s back by breakfast time. 

A small child of indeterminate gender under big warm clothes is making a snowman on the picnic table across the road. This will be another day of rest for us. 

Felicity knits a tea cosy with wool from the wool shop. I read. Felicity got lovely knitted slippers at the wool shop. I considered getting slippers at the supermarket yesterday but decided I didn’t really need them. The RV floor is cold, though. Felicity tells me learning to be kind to others is not enough: I should also learn to be kind to myself. I’m not entirely persuaded but since we’re almost out of beer, anyway, we go out and I get some. 

Perhaps the smoked fish I had for lunch motivated me. Undoubtedly the coffee provided energy. And now that I have beer, why not have one?  Which brings me to a confession. I saw locally made beef sausages in the mini market we went to the other day and despite my sadness for the buffalo, I got some. I finished them for my evening meal today. 

Next day – We go to the dinosaur museum. Will the species that replaces us painstakingly assemble hominid museums?

The museum is excellent. There are lifelike recreations of dinosaurs in the habitat that was here then and there are real fossils, not plaster casts of them, The fossils are displayed with concise and clear explanations of how we know what came when and the scientific method.

Felicity goes on a guided walk to observe the different levels of ground. I climb to the overlook from which everything looks just as it does from below then come back to the RV to eat and rest. 

The sun may come out tomorrow. If my meds are at the pharmacy we’ll go on to Banff and then Jasper. 

Next Day – Today is brighter at times. We go to the Atlas Coal Museum. There are several guided tours but only one we have time for before heading for Banff, a train ride.

The locomotive is battery powered, less than three feet high and it has half a dozen low steel wagons that were used to haul coal from the coal face to the sorting and storage place above ground. We’re the only ones on this trip so we sit right at the front. It’s quite a short trip whose point is really the guide’s explanations and stories.  He does a great job as you can see from Felicity’s expression.

The seam here was an average of five feet four inches high, the same as the average man when it was established a century ago. Other seams were as low as 32 inches. Miners had to lie on their side at the coal face in those and chip with one hand. 

Working at the coal face was the premier job. It paid by the ton while other jobs were paid by the hour. Miners at the coal face worked in pairs. They had to be trustworthy so new hires were first put to work above ground where they could be observed. 

The trains that carried coal from the coal face to the sorting and storage area had a driver and a helper on the last wagon whose job was to open the doors placed where tunnels divided to direct air to wherever the men were working that day. 

In some other mines the helper did not ride on the train but was stationed at a door. He would be there for a ten hour shift with no light. Why would he need light?  He might wander off, though, so he would be tethered to a post. This job was done by boys as young as six. They’d be paid well, the same as an adult working on a farm. 

The tradition then was for the oldest son to inherit the family farm. Many younger sons who wanted to farm would work as miners to save enough to buy a farm. 

An enormous amount of coal was mined around here and miners came from all over to work. Twenty five different languages were spoken in this mine. 

Next we stop off to see hoo doos. I kept seeing guys wearing caps that said HOODOO when we first got to this area. What could it mean?  Was it an acronym like MAGA?  Turns out they are eroded rocks. A plate of hard rock sits on top of a column of softer rock that is narrower. 

Erosion is a big deal here. It’s why so many dinosaur bones are discovered. The soft rock around them erodes leaving many of them intact. The valley with its hillocks that look like slag heaps was formed by a sudden tremendous flood when the ice field to the north melted at the end of the last ice age around 14,000 years ago. 

Now Felicity calls the pharmacy. Did my meds come?  They did!  We go to pick them up then start for Banff. 

The land almost all the way to the outskirts of Calgary is giant crop fields. The average price per acre last year was $2,500 and the average farm size was over 1,000 acres so the days when a coal miner could save enough to buy a farm are long gone. Mining here ended a bit over half a century ago. 

On the outskirts of Calgary densely packed agglomerations of identical houses are surrounded by as yet undeveloped land. It looks as though developers buy farms and cram onto them as many houses as possible. 

As we drive north the land changes to pine forests that are overtaking grassland. White birches at their edges whose leaves are now bright yellow make a beautiful contrast. 

And now we’re among the mountains. So beautiful and so different from the ones I’m used to in the Himalayas. Civilized in a way because they rise out of the pines, white birches and meadows. In the few places where the mountain sides make it possible pines climb toward the summits. 

I slow down to 45 mph as we climb the gently sloping valley to make it easier for Felicity to take pictures and me to look around. And now we arrive at the idyllic campsite. 

Next day – I wake before dawn with both nostrils totally blocked and unable to breathe through my mouth because of the mask. I throw off the mask and pant helplessly for a while. My nostrils finally clear after breakfast hours later. My oxygen level is 85% to 89% depending on which finger I test. 

Felicity asks if I want to read the guide book and see where we could go. I was never one for guidebooks preferring to stumble upon things and unconcerned that I’d miss other things. Now I don’t want to read them. I don’t have the energy any more to do what I used to love doing. I sure can’t hike in these mountains. 

But I do enjoy seeing things, and I very much enjoy Felicity’s delight. She thinks the weather is going to be better than the earlier forecasts so we’ll stay longer in the mountains, not rush to get over them to avoid snow.  On our way to Lake Louise we pass through Tunnel Mountain Village.  We will definitely stick around to see more like this!

Even though it’s almost the end of September, all the parking lots at Lake Louise are full. Luckily, the campground is not. It’s among the pines so the mountains are not visible.  It’s also next to a railroad we discover as a very long freight train rumbles by. 

We’re both surprisingly tired. Felicity sets up her bed after lunch. I’m distressed that it’s so blissful when I relax on my own bed. My oxygen level is now 89% on each finger I test.

Felicity feels revived by a long nap. I still feel about the same, good enough to drive to Lake Louise but probably not to do much walking. 

It’s thronged with people from many countries. They’re a great mixture. Some are staying in the chateau at the lakeside. It must be fiercely expensive. Many came in rented RVs. The glaciers at the top end of the lake are cloud covered but many, many pictures are being taken anyway. 

Felicity goes for a walk round the lake. I sit and watch the mountains and the people. I enjoy watching people now. I’m pretty sure I used not to. Felicity wishes they weren’t here. 

Note:  My friend, David, replied to this email: “Toward the end you wrote “I enjoy watching people now. I’m pretty sure I used not to.” This struck me as odd because it brought back a memory from our trekking together. It may have been our trip to Dhiren’s village, or perhaps Mustang. Anyway, you and I were in the same places at the same time and both of us took many pictures. Some time later I looked through many of your images and I was struck by the fact that most of yours centered on people, while many of mine didn’t even contain people. I remember thinking with some embarrassment that you must have been interested in the people and I in landscapes.”

Back at the campsite we dither about what to do next. Continuing up towards Jasper still feels best. 

Some good health news before I close. I haven’t had a coughing fit for several days. The trick is to keep my mouth closed as late in the day as possible. Felicity lent me an elastic head band which makes it much easier than using my hand. 

Road Trip – Chapter 3

 

Felicity met a man who told her Devil’s Lake has no inlets or outlets. Its level rises or falls depending on the amount of rain and snow. It was six feet higher a few years ago and in earlier times much of what is now lake was farmland.

The land up here is so flat that there’s little opportunity for drainage. The trees we passed that I thought had drowned did so, but not because of a change in the land, just because there was more snow than usual. 

We stop in Rugby, geographic center of North America, to visit the Prairie Village Museum. Felicity first goes to the restaurant next door to sample home made pie and chat with locals. I ingest my formula. 

An aside: I’m now a fan of the BiPap machine. Felicity says I sleep much more soundly. My airways feel better for the slightly moistened air and I assume my diaphragm enjoys the assistance. 

The museum was great though it’s odd to find so many things that were part of my childhood and in some cases my younger adult life, too. The laundry equipment my mom used was so familiar and as for the tools in the blacksmith shop, well, I’m still using many of them.  Never, even at my best, would I have needed a sausage maker quite so big as this one, though.

The school room was similar to the one in my village but mine had no blackboard and we used slates to write on because paper cost too much. 

We were given a third of a pint of milk every day and lactose intolerance had not yet been recognized so I had to drink the milk, anyway. It was better in winter because I could put it up against the stove for a while to cook it.  The pot-bellied stove here is surrounded by a protective barrier. The one in my school offered no such protection. 

I enjoyed the farm machinery especially, of course. They have a traction engine belted up to a threshing machine. When I was a kid, pairs of them would go from farm to farm with a giant plow. They moved down either side of the field and hauled the plow back and forth between them. Very exciting. You can see part of the one here behind the magnificent yellow hay baler, most of which is made of wood.

The soil in this part of the world is sufficiently friable and the fields are so huge that it was practical to pull plows behind the traction engines. Some of them were gigantic. 

This area was settled to a large extent by Germans who had originally been given land in Russia by Catherine the Great. They were attracted here by the Homestead Acts of 1862 and later under which almost 10% of the total area of the US was given to 1.6 million homesteaders. The sandy loam here reminded the Germans of the Russian steppes. By 1960 they owned 45% of the land in this county. 

The man on the desk tells us what Felicity had also been told earlier, that we should go next to the International Peace Garden. It’s only forty or fifty miles north of here, on the border between the US and Canada. 

It was established in 1932 as a symbol of the peaceful relations between the two nations. That was the year FDR was elected President to lead us out of the Great Depression. It was a time when activists for peace and economic justice had powerful appeal. 

So, here we are now at the campsite, nestled in a dense forest of white birches whose leaves are already yellow. There has been no frost here yet but it will come soon. It’s restful after a day of buffeting by wind. 

Felicity asked if it’s always windy in N Dakota. “It is or it isn’t”.  Sometimes the air is still, other times there’s a strong wind. It’s windy often enough that it’s been worthwhile to deploy many huge windmills. 

We’ll investigate the garden in the morning then cross the border into Canada for the next stage of our journey west. 

Next day – It’s pretty cold this morning. There are a couple of huge greenhouses filled with a great diversity of cacti at the Peace Garden. It seems bizarre in this location but their warm environment is appealing. The garden proper is excellent but we retreat quite quickly from the cold to the RV. 

We head north to Brandon then west on the Trans-Canada Highway. We were advised it would be boring but we wanted to see it for ourselves. 

This southern part of Manitoba and Saskatchewan looks a lot like North Dakota. Of course it does. The border is only man’s idea. As Felicity pointed out, everything we see here is this way because men made it so. There are signs in so many places telling us to be careful to preserve the habitat by not introducing invasive species. But all these crops are invaders. Humankind is the ultimate invasive species. 

The high point on our drive to tonight’s campsite just east of Regina was a field of grazing bison.   Why didn’t I take a picture!

This campsite next to the highway is almost full despite it being the end of tourist season. Most of the people here are working on the pipeline. It’s like drawing up in our covered wagon to a temporary settlement of railroad pioneers long ago. 

A random observation: we saw some overweight people in Minnesota and North Dakota but none of the grossly overweight ones that are so common back east. I wonder why?

Health update: I’m learning to manage my drooling/dryness and my coughing. I was still taking saliva reduction meds while the botox injection took effect and my excessive dryness was because I kept doing that too long. I stopped the meds altogether yesterday. There was a bit too much saliva but I was less prone to coughing. I struck a better balance today but I need to experiment about the time of day to take or not take the meds. It’s also very effective to keep a thick tissue over my mouth to avert coughing. It looks funny but from my point of view at any rate it’s very much worthwhile. 

Snow is forecast for Jasper by the time we get there later this week. We’ll go, anyway. 

We drive into Regina to visit the Governor’s museum where we’re guided by a charming and vivacious docent from Quebec. She and Felicity exchange information, Felicity explaining the science and usage of the English toast rack. 

We read of treaties where the First Nation traded their land for health, education and other services in perpetuity from the fledgling Canadian government. Our docent says the reality is rather more complicated. Nonetheless, the people of the First Nation do seem to have been better treated by the Canadian government which feared uprisings by them than Native Americans were by the US government. They could hardly have been treated worse. 

Then we continued west. After around a hundred kilometers the gigantic, flat harvested fields begin to be interspersed with low, rolling grass covered hills. 

After maybe another hundred kilometers we see brilliant white rows and heaps that look like old snow. It appears to have washed or been pushed downhill from an area of digging. It is potash mixed with salt. 

Potash mining is a major industry here. Almost all of it is used to make fertilizer which I guess is very important because this soil is sandy and it does not look very fertile. 

Another hundred kilometers on there are many fewer cropped fields and much more grassland. Some of it is hayed but the big round bales that are left in the fields are quite few and far between. 

As we drive on, the grassland grows steadily poorer. Many fields have been taken over by what looks like tumbleweed. Beef cattle spread out looking for anything worth eating. 

There are quite a few ponds and some lakes, all very shallow looking. Cattle are gathered in a dried up one too far from the road for us to sure but it seems they are licking salt off the pond bed. 

We pass so many trains. Pairs of locomotives with sometimes a third one in the middle of dozens upon dozens, maybe hundreds of freight cars. 

We also see one relatively spiffy locomotive pulling two passenger cars and I remember spending many hours as a kid with a book about the Canadian Pacific Railway, enchanted by pictures of the train barreling through the Rockies. 

The Railroad’s headquarters is a bit further west from here in Calgary. The railroad was how immigrants came to the Prairie lands. Set up in the early 1880s, it was how Canada’s western territory was opened up. 

We camp just outside Medicine Hat, Alberta and are glad Felicity packed a small electric heater with a fan. 

Next day – In the morning Cousin Alison asks if we’re going to Head-Smashed-In Buffalo Jump. Having never heard of it we weren’t, but now we are.  It’s around 3 hours west of here at our 55 mph pace. 

The land flattens again west of Medicine Hat. Many of the fields are irrigated by the gigantic wheeled sprinklers that rotate round a water supply making those huge round fields you see from the air. 

Every so often yesterday and today we pass an oil pump, usually in the middle of a field. A few continue pumping slowly as if they’ve been doing it way too long. 

We pass a couple of fields of corn. I’ve heard it grows as high as an elephant’s eye in Oklahoma. For that to be true up here, the elephant would need to be lying down.  

Head-Smashed-In Buffalo Jump is where buffalo were “harvested” by stampeding them over a cliff. A too-eager participant is said to have had his head smashed in by going too close to where the buffalo fell.   

Buffalo grazed on these vast prairies and some would wander within range of the invisible drop. They have an excellent sense of smell but poor eyesight. Men would dress in wolf skins and, much like sheepdogs, herd them toward the cliff. 

Buffalo are led by females whose top priority is safety of the calves so, to complement the threat from pretend wolves, a man in a buffalo hide would pretend to be a calf wandering away in the direction of the cliff. The herd would follow to bring it back among them. 

When they were close enough to the cliff, many other men, hidden and dressed in buffalo hides to mask their smell, would leap up and yell to panic the herd. Unable to stop because of the pressure of those behind them, the panic-stricken beasts would tumble to their death. The waiting butchers and cooks would then begin work.  They dried the meat, got the marrow out of the bones, stored the fat in bladders, cured the hides and used the bone for needles.  There was also, of course, a great feast.  The stuffed ones on display might not have fallen for the trap because they can see the cliff edge.

We felt sad for the buffaloes.  The interpretation film recreating the massacre has the protagonists say the bounty demonstrates that they are loved and cared for by the higher powers. Perhaps all hominids have justified their acts in this way. Or maybe this is how white men think and we assume everyone else does, too. 

The Blackfoot hunters were doing this long before they had guns.  I don’t know when they stopped. Native Americans in the US switched to hunting on horses in the 17th century, I think.  It’s estimated there were 30 million bison on the Great Plains in the early 1800s but they had almost all been wiped out by mid-century, primarily by government sponsored slaughtering to drive out the Native Americans who depended on them for food.  The Blackfoot practice left the herds intact.

We’re too tired to take the trail to where the buffalo bones were found. Felicity looks for a nearby campsite and there’s one beside a lake so of course she proposes that one. We have no trouble getting a site on the lake shore because there’s nobody else here. It’s getting cold. 

We’ve come almost 3,000 miles so far, driving every day, so it feels time for a day of rest tomorrow.

Road Trip – Chapter 2

 

We’re close to the shore of Lake Superior again tonight but we’re now in Wisconsin. 

The sand that grows scrubby pines close to the bridge where lakes Michigan and Huron meet and one crosses the bridge to Michigan’s Upper Peninsula soon turned more like Maine, forested hills and swamp. 

We decided against the boat ride yesterday and went to the beach instead. The lake water is so clear and the only waves are wash from the sightseeing boats. So peaceful. The lake shore is limestone worn into strange shapes by the storms. 

On our way today after going straight when we should have taken a right, we stumbled on the Michigan Iron Mining Museum. Fascinating. 

We learned about the man who came looking for copper and was shown a mountain of iron by a native American who considered the Mountain’s spirit so powerful that he would not go too close. The prospector was thrilled by the sight. 

Getting iron ore from there to factories further south was difficult but pretty soon the mountain was gone and they were blasting tunnels below ground. It was very high quality ore. 

Surveying the Upper Peninsula was also a challenge since it was entirely covered by dense forest and swamp. Making it more difficult, the iron ore deposits played havoc with compass readings. 

Mining here is now on a giant scale and nobody is living as the native Americans did. Few if any would want to. Native Americans are operating casinos, the tourism market is strong and the mining company must renovate the land they despoil. 

Another thing we learned at the museum is why pasties are a feature in this part of the world. It was impossible to get enough Americans to work in the mines so waves of immigrant laborers were brought in. First to come were miners from Cornwall, England where the tin mines had recently been exhausted. Cornish pasties that were their staple diet proved to be a big hit with everyone. 

Based on the past 24 hours my advice for others with a feeding tube is to puree favorite foods as an occasional treat. The 3 oz of smoked fish I ate last night were still giving me pleasure this morning so we bought 3 lbs more. 

In other news my dribbling is definitely growing less.  It occurred to me to wonder if that makes it less likely that my next incarnation will be as a dog? Felicity said she will bring it to my attention if I start sniffing posts. 

Next Day – We drove up the west coast of Lake Superior, stopped at Meyers Beach, continued on to Duluth, MN then drove west to Bemidji. 

It was a splendid sunny day, around 80 degrees. Felicity painted two fine watercolors at Meyers Beach while I did a rugged two mile walk through white birches, maples, poppels and pines to view sea caves and a rock bridge. 

It seemed quite a long way to the overlook but I was pleased to find I was not short of breath. My breathing was normal on the two mile walk back, too, but my legs felt tired. 

I remembered my first trek in Iceland while I was still piloting a desk. By the end, my thighs had given out entirely. My hamstrings were not completely exhausted though so I was able to shuffle backwards up the steep inclines. 

On the outward walk I heard only the tree tops moving in the breeze. Coming back I heard what sounded like the growl of a bear. I was so hoping to see one but I didn’t. 

There’s little but trees and occasional small cattle farms to be seen from the coastal road to Duluth. It must be a long way to school and that’s likely the only place kids would see friends. It must be even more isolated in winter and they are long up here. 

The road west to Bemidji is also mostly through forest and it’s mostly very flat. At one point small dead pine trees stretched far to the south. I think they drowned. A couple of small rivers showed the water table to be very close to the surface and the ground was densely covered with rushes. I imagine drainage was never good and something changed to slow it even more. 

Today I understood what triggers my coughing and I made a start on a solution. My nostrils grow more restricted over the course of the day because I can’t blow my nose. By afternoon my mouth drops open to get more air and that triggers coughing. 

Pressing a thick tissue against my lips forced me to keep breathing through my nose for a couple of hours but so much catarrh built up on the back of my throat that in the end I began coughing continuously.  Using the Bullfrog machine (it blows air hard into my lungs then sucks it back out making me look like a bullfrog) when we got to the campsite pretty much cleared that problem. 

Tomorrow I’ll try spritzing my nostrils with water to clear them at least partially at lunch time then I’ll try to keep my mouth closed all day and bullfrog when we stop for the day. 

Next day – We liked Bemidji but this is when I discovered that my energy reserves are now very low. 

We drove south to see the head waters of the Mississippi, which drains out of Lake Itasca.  The Mississippi starts on the right of the rocks below.

Felicity had bought tickets to see a performance of “A Streetcar Named Desire”.  I felt exhausted and the botox injection to my mouth has now completely dried up my saliva. We returned to the campsite so I could rest, stopping only to buy anti dry mouth remedies. I tried the spray too enthusiastically then slept all afternoon. 

I had enough strength to drive to the theater but then it seemed wiser to stay in the RV so I wouldn’t make noises or have coughing fits in the theater. It was a good call. I slept through the entire performance, which Felicity says was excellent. 

Then I slept soundly all last night.

Next day – I feel good again. We set off for North Dakota. The view from the road is of trees interspersed with beef cattle farms. The land is flat with many small lakes. It reminds me of Sweden where I spent as much time as I could working. It was never enough. I see why folks from there, Denmark and Finland liked it here. 

As we proceed west the land grows even flatter and much more of it is farmed, chiefly grains and hay at first, then more diverse arable crops. Sugar beet is popular. We also pass an asparagus farm and one that raises “exotic meat” including ostrich. 

We stop for gas and coffee, then at a hardware store. Everyone is so friendly, so different from New England where we lived so long. 

Now almost all the land is farmed. Only the areas of standing water surrounded by bullrushes are not farmed. It looks rather like Essex on England’s southeast coast which is also flat and in places waterlogged. 

Further on still the fields are gigantic, stretching all the way to the horizon.   The most common crop is soybeans. The soil does not look very fertile. Again there are plentiful areas of standing water near the road. 

We stop for the night at Devil’s Lake. The approach to the state campsite is a road across the water making me think lake is a more dignified name than is warranted. At the campsite, though, guys are preparing to haul their fishing boats away so the water is evidently deeper here. 

And now it’s time for smoked fish and a fragrant beer  🙂 There’s a strong and gusty wind but we’re well protected by trees. 


Road Trip Chapter 1

  

September 6, 2018 — We drove west from Gettysburg through fine farm country and beautiful mountain forests, passed the sign for California and stopped in Washington. All in Pennsylvania. Tomorrow we’ll do some exploration in Pittsburgh which is just down the road. 

September 7 and 8, 2018 – I hadn’t yet started writing daily notes or taking pictures so these two days are lost 🙁

September 9, 2018 — On our way to Toledo, Ohio we stopped off by chance at the village of Zoar, a German village. 

The Lutheran Church treated dissenters harshly in early 1800s Germany and those in the south suffered greatly also in the Napoleonic wars.  When in 1816 the king allowed emigration, 300 villagers from there who practiced a semi-mystical form of Christianity with a great emphasis on individual piety left for America. 

Helped by a loan from Quakers they bought 5,500 acres in Ohio but their first winter was devastating so, unable to survive independently, they formed a community where all worked for the common good and there was no private property. 

Three years later they forbade married couples from living together. Their religion required celibacy but the practical issue was they needed the women as well as the men for work in the fields. Pregnancy and children were unaffordable. Marriages were allowed a few years later but the children were raised in nurseries and saw their parents only in church.  They were schooled in German. 

The community established a flour mill, iron furnace, tin shop, wagon factory and other businesses and developed steadily until its elected leader died in 1853. Although nobody  with the same charisma and administrative abilities emerged to replace him, they kept going for another 45 years. 

By then the third generation had seen how others were living and they wanted freedom and their own things. So the community’s assets were divided up and distributed to all and Zoar became a village surrounded by farms just like any other. 

I was struck by how German it all was. The quality of the buildings and cabinetry is very fine, simple designs executed with precision. The children were taught in German. 

The Civil War was a great challenge for the community because they were pacifists. With no better choice, they paid other young men to fight for the North instead of their own. 

I thought about WW1. Schooled in England and knowing my dad lived in Ohio until he graduated from High School, that America had gained independence from British rule and Americans speak English, it seemed odd that it took so long for them to join the battle against Germany. How ignorant we are if we don’t travel.

September 10, 2018 — Tonight we’re in Munising on Michigan’s upper peninsula on the south shore of Lake Superior.  

Driving just over 1,000 miles so far has turned out to be quite relaxing. I feel the same as I used to before ALS, not conscious of my weakness. If anything I feel better, apart from the dribbling and coughing, because I set the cruise control to 55. The engine and drive train are 23 years old and they have a heavy load to propel so it’s good to be gentle and I can relax along with them.  Here’s our home for the next couple of months:

Upper Michigan feels like Cape Cod recast on a giant scale and before people came. There are some settlements, of course, along with abandoned properties along the way. A big hand lettered sign just off the highway read: “WIFE COME HOME. WILL SELL HOUSE”. Beside it was another sign: “OBEY WIFE OR ELSE”. 

Why do I say it’s like Cape Cod?  Because we always try to fit our new experiences into existing concepts. 

I’d never thought much about ice breakers. We toured one today, the biggest ever, built in 1943 to keep Detroit’s and other factories supplied most of the year. It had a crew of 75. 

It has six giant 10 cylinder diesel engines that drive electric motors which drive the propellers. The ice on the Great Lakes tends to be a couple of feet thick and it can easily be many times thicker after storms break it up and pile it in layers. Decoupling the diesels from the drive train lets them stay at the same high rpm despite varying pressure at the bow, the same idea as railroad engines. 

It’s obvious but I also hadn’t thought about what ice breakers actually do, open lanes just wide enough for merchant ships and keep running back and forth to keep them open. This ice breaker was built too wide for the canals between here and the ocean so it could not be captured during the war. 

I notice I get pleasure from roadside billboards advertising meatloaf dinners, egg, bacon and home fry breakfasts, footlong spicy Italian subs for lunch, and so on. It doesn’t matter that I can never eat any of them again. 

Up here pasties are popular. I love pasties, but…  Smoked fish is also available all along the shore. I do hope to puree some of that. The fragrance of smoked fish will surely rise up my throat. 

We’ll stay here tomorrow and go on a boat ride to view rock formations and waterfalls. 

I’ve been able to sleep all night with the BIPAP breathing machine the last couple of nights. The mask compresses my mouth so it’s hard to avoid biting the inside but I do breathe better. 

I think the botox injection I had shortly before we started this trip is beginning to cut the amount of saliva I produce. 

So all’s well. We’re having a good time 🙂

My ALS Adventure – September, October and November 2018

 

We decided to go on a long road trip while I can still walk.  My neurologist who had me hop on each leg thought I’d be OK for at least a couple more months, and the ALS clinic folks told us where we could get a folding walker and even a wheelchair if he turned out to be wrong.  

It would have been costly to rent an RV for a couple of months or more so it seemed better to buy one but it’s unlikely i’ll be able to use it next year so it wasn’t worth buying a new one.  A lot of online research followed by a day of driving around to inspect candidates led us to a 23 foot 1995 one whose layout we liked, that was in good shape cosmetically, seemed mechanically sound and was in our price range.

I built shelves in one of the coat closets, made a low fence for the sleeping loft over the driving cabin so we could store stuff there and not have it fall on us, installed a backup camera, fixed the loose supports on the roof ladder and assembled a box of tools.  We packed an assortment of clothes because we’d be in hot, cold, wet and dry areas.  Felicity got a big collection of maps and guide books from AAA.  And then there was all the other stuff that we would or might need.

After a few days delay waiting for additional supplies of my medicines we set off on September 6.  First stop was Pittsburgh because Felicity wanted to visit an art museum there.  We decided each next step pretty much day to day.  Friends had already suggested several places we should visit and we hoped for more suggestions along the way.

Our only firm plans were to stop on the West Coast to visit Doma and our friends who are hosting her, see my cousin from England and three or more friends there, and visit my cousin and his family near Atlanta who I’d never met.  The only schedule was to be on the West Coast in the first half of October when my English cousin would be there.

I decided to email my family every few days so they wouldn’t worry about us.  That turned out to be like writing a travel journal but more enjoyable because I was thinking about what they might find interesting.  I’ll now assemble them into lightly edited posts to give a sense of what intrigued me about the very different environments we visited, and continue my effort to share the experience of my ALS progressing 

I lost strength during what turned out to be a 10,000 mile, three and a half month journey but I didn’t need a walker.  Felicity persuaded me to start using a hiking pole for balance toward the end although i’m not quite at the point where it’s really necessary.  I do need a neck brace, though, because my neck muscles are too weak to hold my head upright by the end of the day. 

Felicity kindly let me drive the whole way because that was the one physical activity where I still feel the same as I always did.  I’m not having trouble accepting my slow weakening but doing anything I’ve always enjoyed still is enjoyable.

I hope you’ll enjoy Road Trip Chapters 1 – N and I hope they’ll be helpful if you have ALS  or if you know someone who is living with something similar